Discovery

After our Solstice hike.

Ali and I have decided that a kick-start in our creativity is in order. We both love learning new things, stretching ourselves creatively, and doing things together, so we are at the same time going to be learning Spanish together (starting in a couple of weeks at the Winter term), and working on Julia Cameron's Walking in This World program.

Many of you are, no doubt, aware of Julia Cameron's The Artist's Way. I've done the program myself about five times. But I've only attempted Walking in This World: The Practical Art of Creativity, the sequel, once before.

I just read through the first week's reading and tasks, and done most of them. Since Ali and I will be sharing the book, it might be a bit of a challenge, but we'll do whatever works. Our current idea is for me to do it first, and to give Ali the Cliff Notes version without him reading it (or looking through the book), and then he'll do the tasks he wants, as well as the core work that happens every week. I'm a little skeptical about this tactic, only because I find inspiration in reading Julia Cameron. I don't believe I'll be able to convey that same inspiration to Ali when I give him the Cliff Notes version, and then he might not get as much out of the program as I will. (But that's projecting, and telling myself a story, so I won't do it anymore.)

For those of you considering the self-led course, here is a snippet of an outline:

Week 1: Discovering a Sense of Origin
Week 2: Discovering a Sense of Proportion
Week 3: Discovering a Sense of Perspective
Week 4: Discovering a Sense of Adventure
Week 5: Discovering a Sense of Personal Territory
Week 6: Discovering a Sense of Boundaries
Week 7: Discovering a Sense of Momentum
Week 8: Discovering a Sense of Discernment
Week 9: Discovering a Sense of Resiliency
Week 10: Discovering a Sense of Camaraderie
Week 11: Discovering a Sense of Authenticity
Week 12: Discovering a Sense of Dignity

The Basic Tools are mostly the same as in The Artist's Way. The only addition is a Weekly Walk for twenty minutes. Continue doing the journaling of three long-hand Morning Pages, and a solo Artist's Date once a week.

Who's with me?!

I'll keep you updated as I go through the process. I'd love for you to do the same in the comments section. It'll be fun!

Disappointment Feels Heavy in my Chest

Warning: There is nothing profound in this post. In fact, it's probably better if you don't bother reading it.

I get stuck on what to write a lot these days. It's easier to watch someone else's stories on the screen, or to read someone else's words in a book. It's easier to market my book, instead of writing a new one.

It snowed today. And instead of being cozy and knitting or reading or blogging, or glorying in the unexpected day off to play (or even to be accomplished), I felt bad. I cried while watching Little Women. I felt orphaned. Abandoned by family. Some not in a malicious way (perhaps none of them in a malicious way), but I felt lonely all the same.

My mom and my sister (and her family) live in Minnesota and I only hear from them sparingly, every few months or so; my dad (and his family) live not more than an hour away, but I only see him once a year on xmas eve, presumably because he can't be bothered any other time. He and his wife have a new roommate that I only found out about today when he confirmed he would *not* be joining us for our traditional xmas eve gathering because it would just be logistically too inconvenient. And then there's my other sister. The one in Wyoming. The one that stopped talking to me six years ago. For religious reasons, she said.

I asked my friend today if it was wrong to wish your family were different than they were. She said, No. When I said that it felt like I was giving up on them, she said, you can't give up on someone who won't engage.

It's not that they won't engage (except for Wyoming Sister), it's that they don't engage in the way that I want them to. Isn't that loving them conditionally then? "I'll only love you if..."? I keep coming up with excuses for them, or repeating to myself what they tell me. And my mom did just call me last month out of the blue and talked to me on the phone for two hours, when I know she hates talking on the phone, and then we followed up via FB chat last week for a couple of minutes. Another friend said that I don't need to make excuses for them, I need to just let the sad and disappointed pieces of me talk.

Maybe there is something to just accepting that they aren't who I want them to be, and not trying to get more out of them. I should just love them the way they are and get my emotional and familial needs met by others. Who'd want to be around or talk to anyone who is disappointed in you anyway? That way just leads to more hurt. Plus, I'm not the greatest at keeping in contact either. And what's with my whining when I miss them? Why don't I contact them when I think of them, instead of bemoan our separation and wonder why they don't contact *me*?

My children are home, but as teenagers they most often prefer the solitude of their bedrooms and YouTube, and my loverloverman is still in India (due home is six days!) Combining that with my geographically and emotionally absent family members, I feel understandably melancholy. Suddenly the dishes and making dinner look way more difficult to approach than normal.

Blog Nostalgia

I've had some pretty great days this last month. My book launched; I had a party to celebrate--where much fun was had--and my reading was a hit. I've bonded with my kids (one teenager, and one in the making); I received a holiday invite from my ex (first time EVER); I was sick with a fever and allowed myself almost a week of sitting on my couch, reading, and watching movies. I've slept with doggies; make pots of delicious edible things; and played Scrabble with the mother-in-law I hardly ever get to visit  anymore. I have caught up with old friends, Skyped with my loverloverman while he was on a trip to India without me, and generally just smiled about everything that showed up.

Life is pretty grand these days.

I'm starting to get inspired again, too. Creatively.

The other day my friend was threatening imminent departure from Facebookland, and a comment was made about Facebook being a sort of mini-blog, and I thought--with a start--that this was true. (Thus, the scant posting here and other places.) I've wondered a few times if, and how, Facebooking has affected my writing.

I don't feel like I am addicted to screen time. I'm never turning to the computer because I am bored, or have nothing better to do. I'm never turning to the computer because I am sad. I don't waste my time on the computer. Mostly I use it as a tool. I work from my computer. I read on my computer. And, yes, I stay connected to some people on the computer--lots of times through Facebook. And yes, sometimes Facebook will suck me in and I'll stay on the site much longer than I anticipated (or needed to.) Just like when I go into the grocery store with a list of five items, and come out having spent $124.

Facebook, I'm sorry to say, has indeed become my new blog. I post my pictures on Facebook. I occasionally vent about something that needs attention, I post epiphanies, I write witty asides. I summarize in a sentence or two what I used to write pages on. While this might do wonders for streamlining my writing style, in actuality it has pert-in-near stopped it all together. Which is tragic.

This morning while eating breakfast I looked through some of my old book-marked blogs. Ones that I found inspiring in 2009. Most of them didn't make the cut, but it did remind me of how much I really had enjoyed reading and writing blog posts.

I turned to blog reading, and writing, years ago as a stay-at-home, un-schooling mama. (Please note the now-unfortunate blog url that can't be changed: Insane Parents Unite!) It was a way to seek out my tribe, to remind myself that I wasn't all alone on this planet of craziness, and that maybe--just maybe--I had something to say that would help other insane mamas, too. And let's face it. Despite my mostly regular handwritten journaling habit, I still used my blog as a diary. A cataloging of days. It kept track of how much I accomplished in my urban homesteading efforts, it reminded me that I was making a difference in my children's academic and social lives, and more importantly--that when written out like that--I could actually recognize good parenting skills amidst the chaos.

But now I mostly Facebook all that.
In small snippets.
That you can read on a status line.

This is no good, People!

I must return to writing in full pages. Grease the wheels of ingenuity once more. For I've lost the ease at which I once thought up stories. I used to have characters flitting around in my mind, waking me up in the wee hours of the morning, begging to be put on paper. But now, I struggle to write book reviews. I've had a couple of ideas for novels wade into the edges of my imagination, but not long enough for me to meet them properly. Not long enough to invite them to tell me their stories before they go.

I've become rusty.

And in too much of a hurry. (Maybe another by-product of the quick and easy world of Facebooking?)

Point: I must hurry up and print this for my writing group, walk the dogs before I go to yoga, make a to-go dinner to take to my next two meetings, and somewhere in there take my daughter to the print shop to print out a homework assignment!

Mechanic's Mystery Delight

Because I'm feeling a little quirky today, I posted this ad on Craigslist this evening, and wanted to share it with you in the hopes you'll get a laugh out of it. Or at least a lop-sided grin.

Mechanic Mystery Delight - $600 (West Eugene)

Boy, have I got a rig for you! I hope you can channel your inner-Click and Clack Brothers from NPR.

Our well-loved 2000 Pontiac Montana van needs to find a new home. It has many little things "wrong" with it, but none that impaired the driving of it. In fact, it ran just fine, until it didn't. I've taken it to a mechanic who deems nothing wrong with it. I've had the battery tested three times, and am told every time "it's pretty old, but you've got another year on it, probably."

I personally think there is an electrical "issue" that is micro-draining the battery. Because all that happens is it doesn't start. (It's not the starter, it's not the alternator, and it's not the battery.) I've even had it tested for an electrical drain at the mechanic's, and he said there wasn't one, "Unless it's some ghost drain, which sometimes happens." So, there you go. A mystery.

List of off-beat characteristics:
*VCR doesn't work
*AC doesn't work
*Fan selections 1 and 5 don't work, but the rest do.
*CD works so sporadically that it basically just doesn't. (Tape deck and radio work.)
*Radio read out display isn't viewable. I don't think it's a burnt out light, because you actually can read it if there is a high-powered sunbeam aimed at it. :-)
*Rear windshield wipers don't work.
*It's been in a couple of accidents with minor damage. The biggest being the right hand headlamp casing doesn't stay in anymore. (Though the headlights work fine.) I used to tape it in, but I finally just removed it. It lives inside the van now.
*The windows don't roll down anymore because I had the master switch removed. (One day it just started smoking, and melted.)
*The horn(s) are unplugged because the anti-theft program would randomly turn on the alarm sometimes while I was driving.
*The key fob doesn't work. Even with a new battery. You have to unlock the doors the old-fashioned way.
*And one last idiosyncrasy: the blinkers don't stay for long. They burn out rapidly.

But, here's the thing. None of those character "flaws" prevented me from driving it. What did end up sending me to a replacement was this: Every night I'd charge up the battery with one of those slow chargers (no big deal), it would start up right away and I'd drive off. But then, it would randomly not start throughout the day, too. Totally unpredictably. It was a huge stress for me to not have a reliably starting vehicle. But whenever I'd jump it, it would start immediately. No problem. I carried jumpers with me for months. :-)

Despite the frequent jump starts, I still don't think it's the battery. Because all the dash stuff worked. The radio, the lights (inside and out), the fan/heater, whatever. It just wouldn't turn over the engine. But sometimes it would, if I pumped the gas at just the right time.

Again, I think it's electrical. But I'm not a mechanic. And, even if I was, apparently I would be saying that nothing's wrong with it! (Or maybe I just need a new mechanic.) ;-)

Anyway. It's just sitting in my driveway. And I'm still paying insurance on it. I'd like to pass it on to someone else now. Maybe you! Blue book says that a reliably working version of this van, with no additional features (which is basically what you've got now) could sell for $1K. I'm listing it at $600 because getting it to run is ... challenging. Driving it around after it's started is a piece of cake though! My kids are sad to see it go--it's super roomy.

Email me. Make an offer.

Lamentable

Feeling a little nostalgic (bordering on melancholia) tonight. I started thinking of an old friend of mine (she was in my last wedding) that I'd lost touch with. She's still here in Eugene, I think I even have her address and phone number, but we don't run in the same circles, and our lives just diverged.

Not too long ago, probably six or seven months ago, she reached out to me out of the blue. It was a lovely and unexpected surprise. We had lunch together and she caught me up on what was going on. I told her my stories through the years we hadn't spoken, and then expressed apology for not having stayed in touch.

She quickly made attempts at making me feel better about it, though in an unusual way.

Apparently her husband doesn't like me. As in really really doesn't like me. I guess along the way, me leaving my husband planted some fear that my friend would follow suit--even blames me, I take it, for any of their marital discord. .... (I know, right?!)

So I wasn't to be upset about not keeping in touch, her husband wouldn't have allowed it anyway. At least that's how I read it.

At any rate, my friend just had a baby. When she posted a picture of her new son on Facebook, I added my Congratulations to the list of other FB friends doing the same. But I got to pondering tonight: I don't want that to be the only words I say about her new baby. I want to see him, and see her, and hold him, and swap stories, and hear how she's doing. Really doing. Not just status-line doing. And it occurred to me that I probably won't be able to. If I reached out to re-connect, her husband wouldn't approve. And I wouldn't want her sneaking around his back for me. I don't want to be the cause of any secrecy or stilted conversations between them.

So.

I felt a little victimized actually. And a little triggered. A few tears were shed in the car on the way home from an errand. There have been a few people in my adult life who have viciously disapproved of me -- which has hurt -- and cut off contact with me. But no one that has been prevented from contacting me when they wanted to. It's weird and sad and unsettling.

My resolution?

Maybe it's a bad choice, but I think I might text her and share that I'd love to congratulate her in person and give her a hug, but that I don't want to cause a rift between her and her husband, so just to know that I'm thinking fondly of her and wish things were different.

Parenting a Misophonic: Living With Selective Sound Sensitivity Syndrome

My daughter wears her iPod everywhere. And if the buds aren't in her ears, they are in her pocket. She doesn't eat with any member in the family, instead going to her room to eat with the door closed and the music up loud. The only time we've successfully eaten together is in the living room, on opposite sides, with a movie on uber-loud.

She's not a difficult teenager. She's not going through a phase (which I was once guilty of thinking), and she's not making this up.


She has misophonia. It's also known as 4S, or Selective Sound Sensitivity Syndrome. The term was coined in either 2001 or 2002, depending on the text you are reading, by New York based neuroscientists Pawel and Mararet Jastreboff. There is no cure.

Definition and Symptoms

Misophonia actually means "hatred of sound," but -- from the more descriptive Selective Sound Sensitivity Syndrome moniker -- what really happens is rage or panic when hearing certain sounds, like swallowing or sniffling. The most typical responses to trigger sounds (chewing, clipping nails, clicking a pen) are: anger, rage, irritation, annoyance, and anxiety -- leading to the urge to flee or escape the environment. You can imagine the depression, self-hatred, shame, and negative self image those emotions might create in an individual, especially when coupled with an emotional need to strike back, physically, or using mimicking sounds.

My daughter reacts to the sounds of sniffling and chewing. And not just the annoyance that you or I feel about it. It's panic, it's rage, it's lashing out. 

On a recent cross-country airplane ride, when the flight attendants insisted that all electronic devices be turned off (meaning her iPod, and her only workable defense left to her -- she couldn't get up and leave), I held her in my arms while she cried, her nails digging into her palms, shaking, forearms tensed. I plugged one of her ears with one hand and massaged her head, while she shoved her other ear into my lap and held onto me with terror in her fingertips.

This is not made up. No one can make up misophonia.

Eric McDade, osteopathic physician at University of Pittsburg's department of neurology believes that it's caused by "abnormally strong connections between the auditory and limbic system in the brain." In other words, a mis-wiring in the brain that causes an emotional response to a particular sound. (www.post-gazette.com/stories/newshealth/for-sufferers-of-misophonia-silence-is-golden-664657)

Though my daughter's symptoms started about two and a half years ago, we've only known the name of it for almost a year, and yet I have only tried to find her relief sporadically. She's tried some energy work that helped a little, but not nearly enough. I've bought her noise canceling headphones, but they weren't helpful. Earplugs hurt her ears. Her school teachers in the private school she attended were accommodating, and let her sit in the hallway to do her schoolwork when her classmates all had colds or allergies and sniffed her out of her seat.

Misophonia starts pre-pubescently, which is why I thought it was a phase at first. Chewing never bothered her before, so why can't we eat together as a family now? 

An article from New Republic said it is probably an "old brain" problem, "likely located in the part of the cortex that processes emotion and that evolved a long time ago."

Phonophobia is a specific kind of misophonia, and is present when fear of the sound is the dominant emotion. This is not the type that my daughter suffers from. She's definitely a 4Ser -- though the UK Misophonia website suggests that 4S be considered as a kind of misophonia. Regardless, she fights every day with this syndrome, and I ache with my own helplessness.

Treatments

During my research, I've discovered a bunch of new leads to check out. There is a 4S specialist in Portland, Oregon (Marsha Johnson, audiologist) that I want to get her in to see; the first annual misophonia conference scheduled for October 25 and 26th in Portland, Oregon; a couple of forums that she could join and see that she's not crazy and there are others fighting and living with the same condition, and there's MMP to be hopeful for. MMP is Misophonia Management Protocol, and 85% of the people who do it find some kind of improvement.

Melanie Herzfeld, audiologist at The Hearing and Tinnitus Center in Woodbury, New York says that some of the techniques used for treating tinnitus and hyperacusis (extreme sensitivity to certain frequencies of sound) can reduce the effects of misophonia.

Other treatments might be: earplugs, cognitive therapy, neuro feed back, desensitization therapies, counseling, rotating cycles of pleasant sound therapy paired with unpleasant sounds, and psychoanalysis. Or any combination of these. I'd also consider more energy work or hypnosis.

Theories

Misophonia.com says "a current hypothesis being explored is that misophonia is some type of neurological disorder in which repeated auditory signals trigger a fight or flight reflex."

And apparently there is a genetic component, too.

Most surprising, Wikipedia postulates that misophonia may be another type of synesthesia -- a "neurological condition where one stimulation of one sensory or cognitive pathway leads to automatic, involuntary experiences in a second sensory or cognitive pathway." Like smelling a color, or hearing a shape.

Right now, the strategies that my daughter uses are limited to her iPod, leaving the room, and relying on the safety of her bedroom. She also concentrates really hard on any distractions she can find for herself  in the moment that she sees a potential trigger approaching. She plugs her ears, digs her fingernails into her skin, or sings to herself. Every day is a battle in self-control. She fights her limbic brain response to keep her emotions in check and not hurt herself or others. She's strong, and I believe in her, but I know that she'd welcome any help I can get her.

I feel the child advocate in me awakening. I did this once before with my son, who's on the autistic spectrum. Now it's time for me to be my daughter's champion, and help her understand, and live with, this invisible disorder.

Resources and Education

Misophonia 4S Provider Network 
Here's the provider info for the expert specialist in Oregon:
Marsha A. Johnson, Audiologist
Oregon Tinnitus and Hyperacusis Treatment Clinic, est 1997
825 NE 20th Ste 230
Portland, OR 97232
503-234-1221
tinnitus-audiology.com
tinnitusdoctor@yahoo.com

Sound Sensitivity is a misophonia forum for sufferers only.

http://abcnews.go.com/blogs/health/2012/05/18/safer-for-misophonics-2020s-misophonia-coverage is the BEST "definition" I've ever seen of misophonia. Two video clips show actual triggered responses, so the non-believers (and let's face it, there will always be those that doubt) can see real people affected by this.

Misophonia.com has a forum, too, and there's a section for Tips and Tricks.

"Raising My Rainbow" -- a book review

I read another great memoir this week. Hooray for memoirists! Raising My Rainbow: Adventures in Raising a Fabulous, Gender Creative Son by Lori Duron is sweet, and nurturing, and real. It's honest, and ... well ... I'd want to be her friend if I knew her in real life.

When her son, at age three, found a Barbie, Lori and Matt Duron's life changed forever. As well as their two sons'. What follows are years of self-doubt, unconditional love, and the angst of whether or not he can bring his "girl" toys with him when he leaves the house.

It was life-affirming to read about her advocacy, the friends they surrounded their little family with, and the joy that beamed out from little C.J.'s face when he was dancing in an all girls ballet/tap class with a sparkly tutu on.

It's a story about love, first and foremost. It's a story about the minutia of decisions parents need to make when the challenges arise, as they always do. It's a story about acceptance, and providing the best for your child.

I recommend this book to all.

Five stars.